Well yesterday Goose had a Dentist appt and Doctor appt and they both went bad. He now needs some dental work done (again) that means we go to operating room and be put to sleep. He has had dental issues since before he ever got teeth so this was no surprise. We have done well since we have put this off for 3 years just watching to see if he would lose the teeth and he has lost a couple. Then the doctor was our next adventure. I told the doctor Goose was regressing to being 2 years old again. Everything goes straight to the mouth. I was informed this was part of stemming (no I did not know this). Goose has actually chipped some of his teeth from chewing on items like video remote, remote to TV, etc. So the stemming is getting worse and I thought we were doing better. His heart rate is up and his blood pressure a little higher than normal. I am amazed at how much anxiety a 6 year old child can really have. The doctor informed me we may never know what he is thinking it could be anything. He worries about everything and anything always wanting to know what is next. He never stops always got to be doing something. Yes Goose suffers from ADD and I have known this for a long time but the older he gets the worse it is. Goose will be starting physical therapy on Monday and see if it helps with some pain he is having and the anxiety. I was informed that PT sometimes helps with anxiety in children so we are gonna try it and see if it works. I would try anything at this point just to give us both some relief.
Now my problem is I don't know what to do about Meds. The doctor is getting an appt with at Physciatrist but until then she suggested we might try an ADD medication. I would like to say I am totally against medicating children just to calm them down unless it is truly needed. I see my Goose as just that My Goose and he is the way God made him and I just deal with it but it is not about me it is about him and what will make his life easier. If any of you use medications and don't mind sharing your opinions and suggestions I would love to hear from you. Goose tells me all the time that he cant stop things in his head that it just wont stop. I cry every time he says this (you would have to see his face). I can see the frustration in his eyes and God knows I would fix it all if I could.
I need help here so Please if you can I am listening.
Thursday, March 28, 2013
Wednesday, March 20, 2013
Regressing
I try to not compare the Goose to other kids in his class at school, daycare, church etc... but that is hard to do at times. I catch myself saying "Well Goose would never do that and he is the one with the issues!" then I just laugh at my self and try to go on. We were at the YMCA last night swimming and Goose always wants a life jacket on and that is fine but I want to teach him to swim without it (due to it looks really uncomfortable) so I was trying to get him to take it off. I said to him "Goose you don't see the other kids wearing a life jacket" and he said "Well Nana they are not me" I said " OK then you can wear it all you want" I then chose to leave it alone and let him do what makes him comfortable. It is funny how sometimes we as parents and grandparents have to be brought back to the real world by a 6 year old child. It doesn't matter what all the other kids are doing as long as Goose is happy in his world then that is where I need to be with him not trying to bring him into my world. I Love the Little Man and he is a true blessing to me.
Goose has decided he needs to put everything he touches in his mouth. I don't care what it is it goes directly to his mouth. I caught him the other day with a rubber band chewing on it. He chewed on his controller to his game until it fell apart (luckily I was there and he didn't swallow it). He has no fingernails left he has chewed all of them off. He tells me he cant get his head to stop it goes round and round all the time and it makes him nervous (not that he knows what nervous is that is what he says). I just tell him I don't know but if he can tell me what is bothering him I will try to help but he cant explain it to me. He has regressed to not playing at daycare with his little friend also. He had gotten to the point he would play with these 2 little boys (not talk just play) but yesterday the teacher said he just stood alone and would not play with anyone. When he got in the car he told me his head was going round and round and it made him nervous.
Autism has changed my life and I would give anything to change Autism but who am I to say the world Goose lives in is not better than the world I live in. God made him the way he is now I just pray that God gives me the strength and knowledge to Fight this Fight with the Goose and actually help him. Yes it is a Fight (some disagree) but for Goose it is a Fight to do the things that we consider normal (like getting dressed, eating, speaking, looking at someone, showing affection) and the list could go on and on. So I will continue with Goose on his Journey and I Will Fight his Fight!
Goose has decided he needs to put everything he touches in his mouth. I don't care what it is it goes directly to his mouth. I caught him the other day with a rubber band chewing on it. He chewed on his controller to his game until it fell apart (luckily I was there and he didn't swallow it). He has no fingernails left he has chewed all of them off. He tells me he cant get his head to stop it goes round and round all the time and it makes him nervous (not that he knows what nervous is that is what he says). I just tell him I don't know but if he can tell me what is bothering him I will try to help but he cant explain it to me. He has regressed to not playing at daycare with his little friend also. He had gotten to the point he would play with these 2 little boys (not talk just play) but yesterday the teacher said he just stood alone and would not play with anyone. When he got in the car he told me his head was going round and round and it made him nervous.
Autism has changed my life and I would give anything to change Autism but who am I to say the world Goose lives in is not better than the world I live in. God made him the way he is now I just pray that God gives me the strength and knowledge to Fight this Fight with the Goose and actually help him. Yes it is a Fight (some disagree) but for Goose it is a Fight to do the things that we consider normal (like getting dressed, eating, speaking, looking at someone, showing affection) and the list could go on and on. So I will continue with Goose on his Journey and I Will Fight his Fight!
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